In the beginning of my illness, I had more good days than bad days, and I never really thought that one day it would be the opposite. There were things that I didn’t know would happen once my health got worse.
1. I didn’t know I’d have to be my own health advocate. I’ve spent the past several years researching and testing supplements, medications, treatments, etc. It’s been as if my doctors are playing a guessing game. There are days when I want to call every doctor, specialist and pharmaceutical company and ask if I can have a refund for the past 10 years.